Base: $151,753 to $227,630; bonus/equity: short-te...
10+ years industry experience
Global patient advocacy strategy
Rare disease community connections
This role leads the global patient advocacy strategy to improve health outcomes and accelerate time to diagnosis for rare diseases
Job Summary
This role leads the global patient advocacy strategy to improve health outcomes and accelerate time to diagnosis for rare diseases.
The position requires building strategic alliances with disease-specific organizations while integrating the patient perspective into internal decision-making.
Candidates will benefit from a flexible hybrid work model requiring a minimum of three days per week in the office.
Matching Summary
This role leads the global patient advocacy strategy to improve health outcomes and accelerate time to diagnosis for rare diseases.
Salary
Base: $151,753 to $227,630; Bonus/Equity: Short-term incentive bonuses and equity-based awards eligible; Benefits: Qualified retirement programs, paid time off, health/dental/vision coverage
Skills & Requirements
Must-have
10+ years industry experience
Global patient advocacy strategy
Rare disease community connections
Cross-functional leadership influence
Compliant patient engagement protocols
Nice-to-have
Existing rare disease organization relationships
Product launch life cycle management
Agency partner leadership experience
Ex-US healthcare systems knowledge
Patient-centric culture alignment
Key Requirements
Bachelor's degree required
10+ years progressive industry experience
7+ years specific patient advocacy experience
Solid knowledge of drug development and HEOR
Robust knowledge of compliance and regulatory issues